Benefits, challenges and concerns of using anonymised healthcare data – what do you think?

The Academic Health Science Network for the North East and North Cumbria (AHSN NENC) is seeking your views regarding the development of a Great North Care Record ‘Trusted Research Environment’ (TRE.).
Newspaper

Other parts of the country are using TRE’s to make better use of the data they collect everyday within healthcare. A TRE will provide approved researchers such as local universities and healthcare organisations with access to anonymised health data. The data is used to improve research resulting in a better understanding of our local healthcare needs leading to better treatments, care services and planning for our region.

We need to ensure a regional Trusted Research Environment is trusted by the public, uses data safely and appropriately and for the right reasons. At this very early stage they are very keen to get public views regarding the benefits, challenges and concerns of using anonymised data in this way and which we can include in future developments.

They will be as flexible as possible and can hold 1-1 or group sessions either by telephone or on-line video. If you’d like to take part or know someone who would, please contact mark.walsh@ahsn-nenc.org.uk

Sessions will be held between the 8th and the 26th February 2021.

More information here

Share your thoughts

You can help make health and care services better by sharing your experiences and ideas.

Talk to us

See some of our young volunteers in action

 

 

Youthwatch Darlington interview NSPCC and Kooth for this year's Children's Mental Health Week 2021.