Help shape the future of palliative and end-of-life care
Palliative care supports people who are living with an illness that unfortunately cannot be cured. This illness may be cancer but is more likely to be a long-term condition such as serious heart or lung disease where cure is not possible. It focuses on helping someone feel as comfortable as possible in body, mind and spirit, while also supporting their family and carers.
End-of-life care is a form of palliative care given when a person is approaching the final stages of life.
The North East and North Cumbria Healthwatch Network is supporting the NHS in the region to hear how people feel about discussing death, dying and the care they would want for themselves or their loved ones.
Talking about death is something many people find difficult, but your views can make a genuine difference to how support is given at one of the most important moments in life. Your feedback will help shape plans for future services and support in the region.
Dr Kathryn Hall, GP and clinical lead for palliative and end of life care for the NHS North East and North Cumbria Integrated Care Board (ICB) said:
“Every person deserves compassionate and respectful care when they need it most.
“By taking a few minutes to complete this survey, you can help health and care services understand what matters to people, what feels challenging and what could be improved.”
The anonymous online survey asks for views on where you would like to receive palliative care, the most important aspects of end-of-life care to you, whether you have any written plans for your care and how you would like to be supported to find out about care options.
You can take part in the survey through the following link: https://app.onlinesurveys.jisc.ac.uk/s/nencicb/thoughts-about-end-of-life-and-end-of-life-care or scan the QR code below.
This survey closes on 9 February.
Organisations offering support
Thinking about death, dying, or end-of-life care can bring up difficult feelings. If you would like to talk to someone or find more information, the organisations below offer kind, confidential support.
Northern Cancer Alliance – Homepage
Provides information, guidance, and resources to help people understand cancer care and support across the North East and North Cumbria.
Deciding Right – Northern Cancer Alliance
Helps people understand their choices about care, treatment, and planning for the future in a simple and supportive way.
Offers information about hospice care and support for people at the end of life, their families, and carers.
Provides emotional, practical, and financial support for people affected by cancer, including help for families and carers.
Offers support, advice, and someone to talk to if you are dealing with grief or loss.
If you need support now, please reach out to someone you trust or contact one of the organisations above. You are not alone.
