Learning Disabilities; Growing Older, Planning Ahead

Healthwatch Darlington would like to know about the needs of those aged 40+ with a learning disability, to improve the planning process for when families can no longer support their family member to stay at home.

Healthwatch Darlington is the independent champion for people who use health and care services. We find out what people like about services, and what could be improved, and we share these views with those with the authority to make change happen.

We are working together in partnership with the North East and Cumbria NHS Integrated Care Board (NENC ICB) to identify what is needed to improve the planning process for when families can no longer support their family member to stay at home.

We would like to know what the needs are of those aged 40+ with a learning disability, what would make the transition easier as those people get older, what currently works well, and what could be improved.  We want to ensure sufficient and adequate services are in place for those with more complex needs.

It’s really important that you tell us your views and experiences so we can help local providers and partnerships understand what you need so you have greater choice and control over your care and be supported to live well in your community.

We will be holding focus groups, interviews and surveys with cared for people, carers and professionals/support workers. We will always make sure that your information is protected and treated securely.

How can you get involved and support this project?

·       Signpost anyone to us who would prefer to take part in our survey over the phone or face to face. We have a team of trained volunteers ready to assist.

·       Get in touch if you know a looked after person,  carer or professional who would like to take part in a focus group with some of our team.

·       Share with your networksin your newsletter, on your website, or any other communications to help us reach anyone who would be interested in taking part.

·       Share on social media – you can share our survey links using the links below

 

Please note the surveys can be accessed directly using the links below.

Carers

We would like to know what the needs are of those aged 40+ with a learning disability, what would make the transition easier as those people get older, what has been your experience of health and social care services at that time and help to ensure sufficient and adequate services are in place for those with more complex needs. 

Carers Survey

Cared For Person

We would like to know what your needs are to make sure that you get any help you might need as you grow older and maybe get a place of your own.   

It is important that services know what this looks like and how it feels for you. Your views will also help them to decide what they need to do to make sure your needs are met.

Cared For Person Survey

Professionals/Support Workers

We would like to know what the needs are of those aged 40+ with a learning disability, what would make the transition easier as those people get older, what currently works well, and what could be improved.  We want to ensure sufficient and adequate services are in place for those with more complex needs. 

It is important that services know what this looks like and how it feels for individuals going through the process. Your views will help us to understand the baseline of what local help is available now and what you think could be improved.

Professionals Survey

 

You can download paper versions of all three surveys below.

Downloads

Growing Older - Carer Survey
Growing Older - Cared for person
Growing Older - Professionals/Support Workers Survey

Healthwatch are the independent champion for people who use health and care services. We find out what people like about services, and what could be improved, and we share these views with those with the authority to make change happen. By sharing your views with us, we will be able to help local providers and partnerships to understand what they need to do to enable you to have greater choice and control over your care, and for you to be supported to live well in your community.

We will always make sure that your information is protected and treated securely. Any information that you give will be held in accordance with:

  • Data Protection Act 1998
  • As of 25 May 2018, the new data protection legislation introduced under the General Data Protection Regulation (GDPR) and Data Protection Bill.

We appreciate your time in completing this survey and welcome your comments and suggestions.

If you would like the survey in a written or easy read format, please do get in touch.

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